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Re: --books » bookgurl99

Posted by fallsfall on July 12, 2003, at 9:43:00

In reply to Re: --books » lostsailor, posted by bookgurl99 on July 12, 2003, at 8:43:04

Yes. Your doctor can only make good decisions if he has all of the information. Tell him everything.

I also write things down. I either write a list of topics for me, or I type up a page or more. I either read it for my doctor (if I think they need to see the emotion that goes with it), or I let them read it. Writing it down gives you time to remember everything you want to say. When I am sitting in a doctor's office with no notes I only remember 1/3 of what I wanted to say.

I agree with Tony that you need to present the complete story, like you did for us.

Can you go see your old doc at the University of Chicago? Or can you find a neurologist that you can communicate with and trust?

Don't be afraid to push them to investigate things that you think are important. Ask them to explain things (that makes them feel smart) until you are satisfied that they have looked at the things that are important. You need someone (a neurologist) who "owns" your case - who feels responsible for identifying everything that is wrong and coming up with a solution. The lab isn't going to do that.

Good luck!
Let us know how it is going.

 

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