Posted by mantus on July 27, 2011, at 20:14:18
In reply to Re: Went off nardil 1 week ago. HR/BP problems persist » mantus, posted by floatingbridge on July 27, 2011, at 18:56:36
> Landon, when I went off Emsam recently, the maoi effect felt non-linear to me. My second week off was actually a bit more symptomatic. *I am not saying your POTS like condition will worsen*. What I was advised on this very board was that the chemicals circulate for at least two weeks. I would need to look up the post right now to remember. It might have been longer. Someone please feel free to jump in here with some data. Doctors very often minimize the withdrawal windows of medications just as often as they over emphasiize the necessary wash times between meds. Not all doctors of course! But, let's say I have met a few whose ideas did not match my experience.
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> I know about POTS because I suspect I 'have' it. I have read about it but never sought treatment. I am by no meansbvery knowledgable, but in readings, I have not come across a case of a medicine-induced POTS syndrome that did not eventually remit upon withdrawal of medication. Have you read otherwise? I would be curious to know.
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> Best wishes to a swift resolve.
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> > I have had several tests done. An EKG really wouldn't show anything, but that my hr jumps dramatically when I stand. I have did a great deal of research about POTS and can find very little to be honest. One common thing is that there appears to be an increased norepenepherine level in plasma vs. people that do not have POTS. I did once see a cariologist and never felt like a doctor was more ignorant and just plain inept in my entire life. It was a complete waste of time and money. I do now know a doc that has much greater experience with POTS, but the thing is, at this point I am still hoping that it regulates on its own as it was caused by being on Nardil. I guess at some point though, I would have to just accept that it could be a permanent problem and then I could see this specialist.
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>I would welcome a worsening of symptoms, as long as it eventually begins to get better. Actually, the worst 3 days I've ever had with the hr issue have been the past 3 days. The p-doc and I had originially talked about discontinuing the Nardil for 2 weeks then adding viibryd after the washout period. But I told him during the last appt. i'm not putting one more med into my body until this goes away. I will enter another low if I have to, but I'm not going to add something that could possibly worsen these symptoms or prolong them to some degree. My biggest fear is that this hr problem is not going to resolve itself anytime soon, which leaves me in a prime space to relapse hard because the anger is keeping me from thinking positively about anything.
I have did quite a bit of research on POTS, and basically self diagnosed myself months ago as having POTS as brought on by Nardil. Of course, I always thought it would resolve itself when I went off. And I have to admit I haven't found any direct research that has shown a link between a permanent development of POTS brought on by medication, but honestly I can find so little helpful research that I'm not sure it matters. Another concern of mine is that, this "POTS" thing is not a commonly known side effect of Nardil, orthostatic hypotension yes, but not this. Which again just worries me that I might've had something unique inside of me that was like a switch to turn on POTS and that's exactly what Nardil did.
Do you think you have POTS as a result of a medicine or just in general?
poster:mantus
thread:991911
URL: http://www.dr-bob.org/babble/20110714/msgs/992086.html