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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 11 of 11. This is the beginning of the thread.
Posted by ed_uk on April 5, 2005, at 1:04:43
Hi!
Has anyone had any withdrawal symptoms on stopping Tegretol or Trileptal? I know that withdrawal symptoms can occur... it's not something that's been discussed much on p-babble though.
Did you stop abruptly or taper?
Ed.
Posted by Spriggy on April 5, 2005, at 1:04:43
In reply to Tegretol/Trileptal Withdrawal Symptoms, posted by ed_uk on April 3, 2005, at 18:46:33
Aren't those anticonvulsants? If so, aren't you supposed to slowly wean off?
Try this site (he always shares how to taper off)
crazymeds.org
Hope that helps Ed.
Posted by ed_uk on April 5, 2005, at 1:04:43
In reply to Re: Tegretol/Trileptal Withdrawal Symptoms, posted by Spriggy on April 3, 2005, at 19:28:31
Hi S!
>If so, aren't you supposed to slowly wean off?
Yes you are. I just wondered whether anyone on babble had had any personal experience of Tegretol withdrawal symptoms.
I would never recommend abrupt withdrawal of an anticonvulsant- the reason I asked is because some people do withdraw abruptly!!!
Ed.
Posted by ravenstorm on July 24, 2005, at 16:31:37
In reply to Re: Tegretol/Trileptal Withdrawal Symptoms » Spriggy, posted by ed_uk on April 3, 2005, at 19:51:58
I am also interested in this. Has anyone had withdrawal from trileptal, with a slow taper of course. I see that others have had problems with lamictal.
Posted by bogeydune on February 3, 2006, at 20:37:45
In reply to Tegretol/Trileptal Withdrawal Symptoms, posted by ed_uk on April 3, 2005, at 18:46:33
I have been off tegretol for 2 days now (from a 600 mg dose) and I feel very amped up, and am having difficulty sleeping. I would say yes... how long will this last?
Posted by joeytdog on April 23, 2006, at 0:27:31
In reply to Re: Tegretol/Trileptal Withdrawal Symptoms, posted by bogeydune on February 3, 2006, at 18:01:45
> I have been off tegretol for 2 days now (from a 600 mg dose) and I feel very amped up, and am having difficulty sleeping. I would say yes... how long will this last?
-I am currently on a hard cutoff of 600mg dose a day as well, actually i cut down to 300mg the past few days but I am having difficulty sleeping as well, how long will it last? Please advise Thanks
Posted by brazilnut on April 28, 2006, at 16:02:24
In reply to Re: Tegretol/Trileptal Withdrawal Symptoms » bogeydune, posted by joeytdog on April 23, 2006, at 0:27:31
> > I have been off tegretol for 2 days now (from a 600 mg dose) and I feel very amped up, and am having difficulty sleeping. I would say yes... how long will this last?
>
>
> -I am currently on a hard cutoff of 600mg dose a day as well, actually i cut down to 300mg the past few days but I am having difficulty sleeping as well, how long will it last? Please advise Thanks
>Hi Joe!
Are you talking about tegretol or trileptal? I had tegretol for a few months and nothing happened in spite of an abrupt withdraw (I was not aware of such things then). Two years after that I was put on 600mg/day Trileptal, for supposed panic attacks (actually w/d symptoms from other medication) and then I had a big problem to quit. It took me about 6 months to completely wean off.
The hardest part was the final, when I reached a fragment of about 1/6 of the original 300mg pill. I was very anxious and simply could not sleep. But somehow I resisted and in a few weeks more things started to improve slowly. Probably the fact that I was taking mirtazapine too helped me to get back to sleep. But this is not a solution, because mirtazapine itself may have very severe w/d symptoms, including the lack of sleep.
Good luck!
Bob
Posted by goddess on July 20, 2006, at 17:55:21
In reply to Re: Tegretol/Trileptal Withdrawal Symptoms » joeytdog, posted by brazilnut on April 28, 2006, at 16:02:24
> > > I have been off tegretol for 2 days now (from a 600 mg dose) and I feel very amped up, and am having difficulty sleeping. I would say yes... how long will this last?
> >
> >
> > -I am currently on a hard cutoff of 600mg dose a day as well, actually i cut down to 300mg the past few days but I am having difficulty sleeping as well, how long will it last? Please advise Thanks
> >
>
> Hi Joe!
>
> Are you talking about tegretol or trileptal? I had tegretol for a few months and nothing happened in spite of an abrupt withdraw (I was not aware of such things then). Two years after that I was put on 600mg/day Trileptal, for supposed panic attacks (actually w/d symptoms from other medication) and then I had a big problem to quit. It took me about 6 months to completely wean off.
>
> The hardest part was the final, when I reached a fragment of about 1/6 of the original 300mg pill. I was very anxious and simply could not sleep. But somehow I resisted and in a few weeks more things started to improve slowly. Probably the fact that I was taking mirtazapine too helped me to get back to sleep. But this is not a solution, because mirtazapine itself may have very severe w/d symptoms, including the lack of sleep.
>
> Good luck!
> BobI just switched from trileptal to tegretol (for trigeminal neuralgia) and had no wean off the trileptal. Within 36 hrs, my blood pressure shot up sky high (I don't have high blood pressure) and it continues to range anywhere from 160/100 to 200/100. I'm now on day 3 of the symptoms and getting through it day by day, but the blood pressure issue is concerning. The neurologist firmly denies any relation between the 2 events and states that I've developed high blood pressure. Sorry, but I think not. Seems way too coincidental to be 36 hrs into a total wash out and to suddenly develop high blood pressure.
I'm searching to find out more and can't find any information connecting the 2 events, but I know it to be true. In my body at least.
Posted by SLS on July 20, 2006, at 18:53:11
In reply to Re: Tegretol/Trileptal Withdrawal Symptoms, posted by goddess on July 20, 2006, at 17:55:21
I don't know about the withdrawal from Trileptal, but starting Tegretol can do weird things with blood pressure on rare occasions. Try searching Medline.
- Scott
Posted by TheMindofChrist on December 26, 2006, at 13:44:11
In reply to Tegretol/Trileptal Withdrawal Symptoms, posted by ed_uk on April 3, 2005, at 18:46:33
> Hi!
>
> Has anyone had any withdrawal symptoms on stopping Tegretol or Trileptal? I know that withdrawal symptoms can occur... it's not something that's been discussed much on p-babble though.
>
> Did you stop abruptly or taper?
>
> Ed.
I came off Trileptal 1200mg in one month and experienced tremendous effects within one weeks time. I was confused, disoriented, delusional, abnormal thinking, racing thoughts, and catatonic.I am now trying to come off of it super slow. 6-8months. I come down one quarter of a 150mg a week and will be off completely by April 2007. I am currently at 488mg. I feel very depressed and tired all the time.
Posted by Basia on March 17, 2007, at 11:08:01
In reply to Re: Tegretol/Trileptal Withdrawal Symptoms, posted by goddess on July 20, 2006, at 17:55:21
Hi
I am slowly coming off Tegretol Retard and am reducing by 200mg every three months. I went from 800mg to 600mg and am now on 400mg. I have been fine apart from some initial spaciness and a touch more anxiety. I can sleep ok, feel lighter but sometimes feel unnecessarily anxious in the pit of my stomach. I believe it's worth it and feel much better in general. My psychiatrist wants me completely off it in six months. I am on 800mg of Sulpiride and 400mg of Lamotrigine so this probably helps too. Since I have Bipolar 2 I need it though.
Good luck
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