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Re: DINAH » WaterSapphire

Posted by Dinah on September 23, 2008, at 11:15:56

In reply to DINAH, posted by WaterSapphire on September 23, 2008, at 8:50:07

Running on adrenaline with no energy sounds normal to me. :(

It sounds weird, but even the involuntary naps have nothing to do with real sleepiness, or even tiredness. I can be completely wired, yet feel an inexorable pull to sleep. It's not that I fall over. I can put it off for minutes, or even hours. But putting it off that long has a cost.

The hypersensitivity varies a lot. Sometimes I turn the volume down close to nothing on my TV and can hear a normal conversation three rooms away. Sometimes the slightest breeze feels like sandpaper on my skin. The wind hurts is what I think. Sometimes the vibration of the air conditioner through the floor or the computer passing down through the desk to the floor up to my chair is as clear to me as a touch on my arm. Sometimes I walk outside and wince, because the sun seems abnormally bright. (Although that seems to correlate perfectly to getting a migraine later in the day.)

My biggest (immediate) migraine trigger is lights or changes in barometric pressure. Hmmmm... I ought to try to figure out if I have more migraines in the subtropical climate here in the summer.

Much of the time I'm ok. And sometimes I'm totally oblivious to minor sensory input.

I'll look into those tests. I have this weird and totally innocuous thing that happens to me that most people think is weird. Looking it up, its' got something to do with acetylcholine and the dysregulation of the parasympathetic nerve system, or autonomic nerve system, or something. But I'd need to go back to school to understand any of it. Hey, I forgot to mention that one to the neurologist. He'd think I'm even more interesting than he already finds me. Sigh.

I had just started taking magnesium (I think) when I evacuated for Katrina. I never got back to it when I returned. I'll look into it again. Is that the one that is supposed to be calming? If I don't see any link to kidney stones, I'll try it again. I think I vaguely remember my urologist telling me to be careful with calcium supplements.

Thanks, Watersapphire. I hate to think that others have the same problems I do, but it's good to share experiences and what works.

Don't you think the absence in the DSM is a crying shame? I don't think the syndrome, or whatever you would call it, is particularly rare. It may vary in degree, but these are a lot of the things that have been considered "neurotic" over the ages. As the physiology of more and more of them are discovered, they move them into "real" medicine. But at the same time as they're recognizing that maybe these things can make a person neurotic, they're also throwing away the idea that they frequently don't occur separately, and it may be useful to recognize it as a whole and treat it as a whole.

 

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