Posted by lucy stone on July 30, 2004, at 12:52:16
In reply to Re: are you ok fires? » Ilene, posted by fires on July 30, 2004, at 0:23:40
My daughter has NCS, a condition with some symptoms similar to POTS. The web site you gave below has a very good section on NCS with some new jounal articles which I have forwarded to her doctor, so I thank you for giving it. In order to definitively diagnose the NCS she had a battery of tests including but not limited to: EKG, sleep deprived EEG, cardiac and carotid ultrasounds, treadmill stress tests, cardiac event monitor, and a tilt table test with isoproterenol. The tilt table test proved definitive. The web site specifically states that patients who suspect they have POTS should not self diagnose, yet you stated that you self diagnosed. It addition, you say that it was diaganosed with an event monitor, but the web site does not say that POTS can be diagnosed by an event monitor. An event monitor is used to determine the effect of POTS on cardiac activity. How was your POTS definitively diagnosed? It is important that your condition be diagnosed correctly if you are to receive proper treatment.
> > Did you say you had POTS? I have a related condition, called neurally mediated hypotension.
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> Yes. It appeared I had NMH for a very brief time , but then I was misdiagnosed with Parnate caused tachycardia, then anxiety,then I DXed myself with POTS and showed a Cardio. my "home" BP/Pulse test results.
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> An earlier Holter monitor test, and then an event recorder showed POTS (the subtype without hyotension).
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> bye
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> Have you ever been Dxed with Chronic Fatigue Syndrome? Many of those patients have NMH or another type of dysautonomia.
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> bye
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poster:lucy stone
thread:368898
URL: http://www.dr-bob.org/babble/psycho/20040728/msgs/372370.html