Posted by ert on August 16, 2018, at 23:12:53
In reply to Re: to alexandra_k, credit deserves..., posted by alexandra_k on August 16, 2018, at 19:56:36
For my ears you sound like a fairly naive, lovely young lady. But maybe I am wrong. Young people deserve special protection. They can post things that they dont want. They are vulnerable, they cant outguess the consequences of their decision and actions.
This is not a supermarket card and not facebook. On supermarket cards turnover of nutritional products is saved, on facebook you can delete data and you can delete an account, its not just the surveyor in nz its about the Chinese, Americans, the Spaniards, coworkers, departments and even more. Here is other data saved than that.
He violates intellectual property rights, sensitive personal data rights (depending on country), personally identifiable information (PII) and newly EU right to be forgotten.
I dont want to point out only negative aspects here, but if its possible someone should act according to the boundaries that the law sets.
The laws also adapted to new circumstances in the recent twenty years. I dont want to blame him here only, because of the fact that he started this project almost twenty years ago.
If you think he could make money, due to the altruistic behavior of sick participants and ads pop up from eg. pfizer or glaxo, the project would be even more ethically questionable. And a psychiatrist is at least middleclass or more.The quality of a database is one thing, the property rights and personal rights of individuals another. A database can be archived and saved personally, printed out or downloaded with tools like Cyotek Webcopy.
I am sorry that you got harassed by stat people in nz. Thanks for having you from nz. Take care.
poster:ert
thread:1100306
URL: http://www.dr-bob.org/babble/admin/20151112/msgs/1100392.html