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Re: I'm curious....$$$....£££....$$$.....trigger.. » blueberry1

Posted by Quintal on December 19, 2006, at 20:46:38

In reply to Re: I'm curious....$$$....£££....$$$.....trigger.. » Quintal, posted by blueberry1 on December 19, 2006, at 18:47:18

>Are there any on the list that you got a tiny bit of response from?

Yes, I got a response from most of them but they either pooped out or I couldn't tolerate the side effects. With Parnate my pdoc refused to raise the dose above 30mg and I only responded to the 80-120mg range. Low doses made me feel worse. Benzos worked very well, but they are not a long term option in the UK and I can't afford to buy them online any longer.

>I wonder if it is something besides brain chemistry? Is your thyroid borderline between high normal and hyperthyroid? If not, that's where you want it. Some doctors just ignore the tests and prescribe natural T3+T4 enhancement to see what happens. Or you can mailorder it yourself. Tests are not always helpful or accurate and their results can be debated. Genetics vary so much.

The last time I was in hospital the thyroid test came back low. They said I didn't need any medication though. This was after I'd been experimenting with levothyroxine though and I wonder if I may have damaged my thyroid as the results were always normal before I did this - or just coincidence?

>Maybe it's not a primary neurotransmitter but instead a secondary messenger. You could try high dose insositol 10g - 12g for a few days and see what it feels like. If nothing, forget it.

I'll look in to that. My multivitamin contains insositol. I don't know how much - very little I suspect.

>And phosphatidyl serene.

I tried that a while ago - nothing.

>Pyroluria? Do you have any little white spots on your fingernails? Do a search on pyroluria to see the symtoms. Do they fit you? If yes, all it takes is megadose vitamin B6 and zinc.

I have a tiny white speck on my little finger nail - I don't suppose that counts? The thing about having skin that doesn't tan applies to me and the stress, depression noise sensitivity etc. I've been taking a multivitamin that contains high levels of vitamin B6 and zinc for a few years. It's also low in copper, but I haven't been to find a multivitamin/mineral that does not contain copper in the UK.

I'm thinking of having a complete overhaul by one of those naturopathic doctors if I can find one in my area since the NHS has just about given up on me.

>Were your omega-3 oils high when you tried all those meds? Do you eat fish 3 to 6 times a week? Do you, or did you, take fish oil?

Yes, I've been taking between 1-2g of omega-3 fish oil for about two years. It does seem to help quite a bit as a mood stabilizer and antidepressant. May not help my mercury levels though as it's not purified as far as I know.

>Ever tried high dose SAMe? If you are undermethylated, nothing is going to work very well until that is addressed.

No, but I've tried high dose TMG which is supposed to be converted to SAMe have a similar effect but with no result as far as I could tell.

>I wonder what else it could be? If none of those drugs helped you even a little bit, that is a clue that it is not brain chemistry. Or if it is, then it is by a mechanism you haven't tried yet, such as neurotransmitter releasers instead of reuptake inhibitors. Such as adderall and cousins. And dopamine helpers like requip or pramipexole. And of course lithium and depakote should not be ignored.
>


Adderall is *not* an option in the UK (!) my GP looked at me as if I'd just asked her for a gram of crack when I innocently requested dexedrine a few years ago. I've tried illicit Ritalin, street amphetamine paste and cocaine, and they didn't help much. With amphetamine I mamnged to clean my kitchen cupboards out and stack everything up tidily, but I rubbed all the skin off my fingers because I was rubbing so hard (obsessively) with a cloth for hours at a time. I don't think stimulants really suit me and there's no chance of getting a doctor to prescribe them unfortunately.

Depakote is one I forgot to add to my 'anticonvulsants' list earlier. It was one of the first drugs I tried and I didn't like it much - seemed to make me feel flat and empty, then the hair loss started. I was advised against lithium in the beginning by my pdoc so I've never tried it. Lamictal was very effective but only when taken with benzos - it made me too agitated and irritable otherwise.

I had a good response to low dose amisulpride which is supposed to be a dopamine helper. Don't know why I'm not taking it now........

I identify strongly with Asperger's Syndrome. I think I'm definitely on the autistic spectrum anyway - my grandmother once told me 'they' (doctors I presume) once thought I was mildly autistic as a child. Not sure if UK GPs were familiar with Asperger's Syndrome back then. Borderline Personality Disorder also feels familiar but is it possible to have both?

>If these ideas are junk, please just ignore.

I think they're very good. I'll look into the insositol and probably give it a go. Thank you for taking the time to write it.

Q


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poster:Quintal thread:715014
URL: http://www.dr-bob.org/babble/20061217/msgs/715121.html