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How VNS Therapy is Going » deniseuk

Posted by juanantoniod on February 18, 2006, at 1:01:10

In reply to To juanantoniod, posted by deniseuk on February 17, 2006, at 4:05:46

Hi Denise,

In a nutshell, it’s going fine. I’m still at the initial setting of .25 milliamps, but I go in on Monday for an increase, probably up to .50 milliamps. At first, I didn’t feel anything, but then I noticed when I was talking that my voice got hoarse. Initially, it was kind of cool, because I knew it was actually working – stimulating -- but then it started to interfere with making phone calls. I emailed my Case Manager and asked if I should try and speak through the hoarseness, or stop the stimulation with my magnet. She said to try and talk through it as much as possible because it would help my body become adjusted to it. After this, I only used the magnet when absolutely necessary and just worked through the stimulation most of the time. After several days, however, I barely noticed the stimulation any more and now I don’t even know when it’s happening, and my voice doesn’t change at all…well maybe a tiny bit. The ONLY thing that I think I may be experiencing is shortness of breath. At times, I feel like I’ve lost my breath and need to take some deep breaths to catch up. I don’t know if it’s the stimulation doing this, or something else, but because one of the side effects of VNS is shortness of breath, I think this is the cause. Either way, it’s tolerable and as long as my body adjusts to it, like it did to the voice change, I will be fine with it.

I’m just anxious to get my stimulation settings up to the therapeutic level, which is 1.25-1.50 milliamps, and be at that level for 6 months, so I will have some opportunity for effect from this treatment. Once I’ve had 6-12 months at the therapeutic level, I will be satisfied that I got the chance to see what effect it had on me. If you have any other questions, please do let me know.

Best regards,

Antonio

> Hi Antonio,
>
> I was just wondering how the VNS therapy is going?
>
>
> Denise


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