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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 15 of 15. This is the beginning of the thread.
Posted by jonhed on June 26, 2016, at 17:22:24
I don't feel well.
And due to the Oculogyric crisis i get from every anti-psychotic i can't take them.
I hope for the memantines anti-psychotic effects when it actually shares the 5-HT3 receptor antagonizing effects that olanzapine does to.
and the sigma receptors σ1 agonist that some antidepressants and lamotrigine does.That is two medications that has worked extremely well for me but the Oculogyric crisis occurs from both of them and i can't take that. It was traumatic for me as the doctor took 6 month before they recognized it, and it was like living in hell for 6 month. F**king incompetent doctors.
I need an anti-psychotic effect and this is my last shot.
If it don't work i'm going to say goodbye to my friends and family.
Posted by Phillipa on June 26, 2016, at 18:14:56
In reply to Don't know what to do., posted by jonhed on June 26, 2016, at 17:22:24
No please do not there is hope for you. I know there is. Phillipa
Posted by SLS on June 26, 2016, at 19:24:42
In reply to Don't know what to do., posted by jonhed on June 26, 2016, at 17:22:24
What are your symptoms?
Diagnosis?
- Psychotic depression?
- Mixed-state bipolar?
- Schizoaffective?
- Scott
Posted by jonhed on June 27, 2016, at 18:21:10
In reply to Re: Don't know what to do. » jonhed, posted by SLS on June 26, 2016, at 19:24:42
(Sorry for my outbreaks in the other threads, i should have read this before i wrote angry stuff.. i'm sorry.. please forgive me.)
No, none of them, i'm thoroughly observed for over 3 years 2 hours a week and my diagnoses are very "secure", so please believe me when i say my diagnoses.
Dependent personality disorder (100%),
A complex OCD (unspecified is the right word maybe) with somatic focus (can't stop taking my pulse, checking my pressure, changing posture every second, rhythmic tics in my muscles that makes imagine patterns, checking my body several hours a day, and the normal OCD things + sexual aggressive intrusive thoughts.)
Panic disorder.
GAD (Maybe it's gone now)
CPTSD ( Attachment trauma)
They come with dissociative symptoms as well, like depersonalization, OBEs when falling asleep, etc etc.
Hppd and Flashbacks.
I can function and have a half time job now with my current regimen, methadone 15mg and klonopin 2mg, tapering zopiclone 15mg long term use and nitrazepam 10mg tapering.My psychiatrist says that i can be helped from memamntine cause i've (for real) have tried all medications there is in sweden (45), every antipsychotics, antidepressants, mood stabilizers, stimulants, anxiolytics and parnate for 1 day.
My psychiatrist knows that i can't take most of them because of my hypocondria and the crisis i mentioned before.
I've been thinking about tianeptine, a license-medication in sweden.
Have you some ideas scott?Very appreciated.
Why we have ruled out bipolar is that i always sleep well, and schizo-disorders was so far away from that my psychiatrist said that she had more of that in here then i had lol.But i don't know anything anymore.
My psychologist is very reluctant (in a very good way) to set diagnoses if they don't cause a function.
You know what i mean?I'm blessed to have here and have had for 3 years for over 250 sessions.*
Please help me and sorry for my outbreaks.
I have very much empathy and wanted to connect with Lou, but now i know that you can't.
Posted by Phillipa on June 27, 2016, at 18:28:53
In reply to Re: Don't know what to do., posted by jonhed on June 27, 2016, at 18:21:10
Not Scott SLS but you are very correct in the connection with Lou. Glad you realized this. Phillipa
Posted by jonhed on June 27, 2016, at 18:35:42
In reply to Re: Don't know what to do., posted by jonhed on June 27, 2016, at 18:21:10
This is important to know:
Part of why i'm diagnosed PTSD is because of antipsychotics.
I was in a locked psychiatric ward for 6 month and had Oculogyric crisis for the whole time without anyone seeing it even as i mentioned it and every doctor can see it if they have the right education.
So i was in my room, not socializing with anyone for 6 month cause i thought that i was having a psychosis and didn't wanted to show the other inmates there this symptom.
It was when i came out from there that my doctor at home said that it was Oculogyric crisis, he saw it right away and took away all my neuroleptics. and 10 days later the symptoms was gone.
The doctors in the psychiatric ward was filed a police report cause of this, they did me very wrong and you can maybe imagine thinking for 6 month and be told that you're having a psychosis when you don't have one is traumatic.
Very traumatic experience cause it was so long.
I have never had a psychosis in my life that isn't due to amphetamine use or medication. I got two neuroleptic induced psychosis from quetiapine. yes, they exist. just read. And i have it in my journals. (been clean for 12 month)
Just so you know why i'm so scared of medications.
(In sweden you get locked in if you are a danger to yourself when you take drugs very destructively. I know it's hard for you to get these things, but this is how sweden works. just so you know why i was locked in for 6 month. that it was not for being psychotic, just having a lot of overdoses)
Posted by SLS on June 27, 2016, at 22:50:59
In reply to Re: Don't know what to do., posted by jonhed on June 27, 2016, at 18:21:10
Hi.
1. I wish that I had read this post earlier. I was too abrasive in my posts toward you along other threads regarding Mr. Pilder. I apologize.
2. Your explanations here regarding your illness are both comprehensive and compelling. Has somatiform disorder been excluded?
> Dependent personality disorder (100%),
That sounds painful.
I am not familiar enough with your situation to make any informed suggestions. The choice of methadone is interesting. Suboxone (buprenorphine + naloxone)? I wonder if adding naltrexone to methadone would be helpful. Perhaps buprenorphine could be used instead of methadone.
Naltrexone is a drug that can reduce chronic repetitive impulses, behaviors, and intrusive thoughts. Low-dose naltrexone (LDN) has been advocated for addressing certain conditions, but I am not sure that this would be appropriate for you. Definitely research naltrexone if you haven't already done so.
- Scott
Posted by jonhed on June 28, 2016, at 16:15:34
In reply to Re: Don't know what to do. » jonhed, posted by SLS on June 27, 2016, at 22:50:59
Oh buprenorphine is not good. iäve been for it for 3 years straight and it fuckes up your life completley and you always feel sick.
but in theory it is good, and the other side around with methadone, in theory it is not good, in real life it is.
Because methadone is 50/50 levo and Dex, dex is not an opiate, is an nmda-receptor antagonist, a relatively strong one,.
That causes me to take small doses and anyway get big effects of the opioid, and it's neuroprotective.
so i'm very very happy, and my psychiatrist to.
She absolutely hates buprenorohine, espacially with naloxone to, because you are always in withdrawal. it's terrible.
You have to try it to know sadly..
but believe, i hope you do.
Posted by jonhed on June 28, 2016, at 16:19:03
In reply to Re: Don't know what to do. » jonhed, posted by SLS on June 27, 2016, at 22:50:59
i have somatization to some degree and will continue the (i dint know the word in english, but investigation like psychiatry) after summer.
DPD is horrible and has set me in very bad situations in my life and i function very bad in society sadly..
ocd and cptsd is easier but "heavier" to live with.
Posted by jonhed on June 28, 2016, at 16:24:49
In reply to Re: Don't know what to do., posted by jonhed on June 28, 2016, at 16:19:03
Methadone is something i've never tried before against the health anxiety.
it makes you numb and A LOT less worried about your body.and for dpd = Gold Standard.
I've had just 15mg for lver one month and i don't feel the opiate high anymore and don't want more even though they want to raise me to 90.
I can't describe in words what a different opioid it is from oxycodine and morphine and subutex..
I'm so happy i nearly cry when i think about it.
but there are a lot to do before i can function as a whole.
Memantine on monday, it will be interesting. if it doesn't work, i will CBT hardcore and maybe try TMS .
Or do you have some tips?
Posted by Horse on June 29, 2016, at 4:32:58
In reply to Don't know what to do., posted by jonhed on June 26, 2016, at 17:22:24
I'm sorry to hear you're not feeling well. I looked up Oculogyric crisis, and it sounds awful. I'm so sorry you've experienced this! I expect you'd have ptsd after that and the six months of confinement.
I also read a little about methadone after your post, and what you describe as your experience is very interesting. How wonderful you've found this treatment :)
I've heard that for some metamine can be incredibly helpful for OCD. What you say about metamine's anti psychotic effect is very interesting. As far as tips, I don't have any except that you keep trying and not leave your loved ones.
As far as OCD, a poster name phiddipus wrote about his and the treatments that have worked for him, so you can search this site and find them. Good luck :)
> I don't feel well.
>
> And due to the Oculogyric crisis i get from every anti-psychotic i can't take them.
>
> I hope for the memantines anti-psychotic effects when it actually shares the 5-HT3 receptor antagonizing effects that olanzapine does to.
> and the sigma receptors σ1 agonist that some antidepressants and lamotrigine does.
>
> That is two medications that has worked extremely well for me but the Oculogyric crisis occurs from both of them and i can't take that. It was traumatic for me as the doctor took 6 month before they recognized it, and it was like living in hell for 6 month. F**king incompetent doctors.
>
> I need an anti-psychotic effect and this is my last shot.
>
> If it don't work i'm going to say goodbye to my friends and family.
Posted by SLS on June 29, 2016, at 8:41:17
In reply to Re: Don't know what to do., posted by jonhed on June 28, 2016, at 16:24:49
My knowledge of DPD is limited to my own experience with it. I experienced severe depersonalization and derealization for a few years. I was under extreme stress, and my state of anxiety was unrelenting. It didn't go away completely, and there are still some residual effects after 30 years. The D&D remits when my depression goes into remission. I find that interpersonal psychotherapy is close to being worthless during periods of severe depression. However, I found CBT to be helpful, regardless of mood state.
I would just recommend that you investigate the use of naltrexone, especially at low-dosages (LDN).
Hang in there. Your persistence should pay off. It already has.
- Scott
Posted by jonhed on June 29, 2016, at 12:21:07
In reply to Re: Don't know what to do. » jonhed, posted by SLS on June 29, 2016, at 8:41:17
Thanks both of you SLS and Horse.
I have looked up naltrexone but cause of my previous opiate addiction, low dose methadone was the best option for both remaining clean from the needle and for the other things i've said :-)And like i said, i love pharmacology and is happy to have found an old professor who now is my psychiatrist, it has helped me much to have someone to really bone out what can help me and not.
And that she understands my hypersensitivity to APs, that is the best thing.DPD = Dependent Personality Disorder, just to clear up.
I will update you on monday/tuesday when i start memantine.
My biggest hope is the boost that it can provide to the anti-compulsive part of methadone, cause both are partially nmda-antagonists.
Now it takes me 1-2 hours from laying in bed and start to sleep, to get all things done (mostly fixing the bed so it's perfect like 1 cm from the wall in every side of the bed, which is f**** impossible because it moves every time i move..)
CBT is the best thing for me though, i've been on it for 3 years two days a week mostly, so like 250 sessions.
I hope i get to continue.
Posted by jonhed on June 29, 2016, at 12:28:44
In reply to Re: Don't know what to do. » jonhed, posted by SLS on June 29, 2016, at 8:41:17
And i'm very excited about that my psychiatrist says that memantine can "repair" damaged nerv-cells, that has been damaged from my abuse of different drugs since childhood.
I hope she's right. Cause i can feel that everything is not as it used to be and i'm pretty "slow" now after these years.
Maybe it's a myth, but maybe it reverses exotoxicity..
Posted by Zyprexa on July 9, 2016, at 22:03:04
In reply to Don't know what to do., posted by jonhed on June 26, 2016, at 17:22:24
couldn't you take a lower dose of zyprexa?
what are you oculogyric symptoms that you get?
This is the end of the thread.
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