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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 2 to 26 of 26. Go back in thread:
Posted by janejane on January 15, 2010, at 18:17:52
In reply to Thanks and Updates, posted by bleauberry on January 15, 2010, at 17:22:00
Welcome back, Bleauberry! I'm so very glad to see you again. You have such a unique voice here, that I think is needed. Thanks for the update too. It was really informative, and I'm sure helpful to many. I'm very sorry the Stablon didn't work out.
If you don't mind taking a look, I posted on the alt board about getting some amalgam removed. I had questions you might be able to answer. I started a new candida thread there too. (Now I'm wondering whether garlic would be a good candidate to try for that. Seems to be the supplement of the week, with both you and Netch mentioning it.)
OK, after reading through what I just wrote, I now I have the theme song to "Welcome Back, Kotter" in my head. Does that date me, or what? Well, whatever...
WELCOME BACK BLEAUBERRY!!! WE MISSED YOU!!!
Posted by ColoradoSnowflake on January 15, 2010, at 18:31:51
In reply to Thanks and Updates, posted by bleauberry on January 15, 2010, at 17:22:00
Bleauberry - It SO good to see you back!!
I'm struggling to reduce my Parnate dosage..down to 40mg now.
About 8-10 years ago I had all my silver colored fillings removed, followed by a couple of years of 30+ intravenous dmsa chelation treatments along with some hydrogen peroxide ones and Vit C ones. None helped my depression. My mother was doing chelation also and it hugely helped her heart disease!!
Hugs,
Gayle
Posted by Phillipa on January 15, 2010, at 20:58:43
In reply to Re: Thanks and Updates, posted by ColoradoSnowflake on January 15, 2010, at 18:31:51
Welcome back from the bottom of my heart. You're a huge asset to babble. You give me I know lots to think about. Sometimes it's scarey but so easy to just file it away. I'm grateful for you although sometimes we also disagree. Not really mine is usually out of fear for the info you posted. What's important is that you are back. Love Phillipa
Posted by Phillipa on January 15, 2010, at 20:59:58
In reply to Re: Thanks and Updates » ColoradoSnowflake, posted by Phillipa on January 15, 2010, at 20:58:43
Above for blue. Colorado missed you also. Love Phillipa
Posted by floatingbridge on January 15, 2010, at 23:18:27
In reply to Thanks and Updates, posted by bleauberry on January 15, 2010, at 17:22:00
Bleauberry, how good to hear from you. I'm glad your back and posting again.
:-)
I wish you the very best this year. And thanks for sharing an overview of your process--very interesting. May this always be a forum for ideas, information, and support.
February begins a Tiger year. Courage!
warmly,
fb
Posted by ralphrost2 on January 16, 2010, at 20:08:48
In reply to Re: Thanks and Updates » bleauberry, posted by janejane on January 15, 2010, at 18:17:52
Welcome back BB
It's hard to imagine why you would have been blocked, but I guess that was just a misunderstanding, as it happens sometimes.
You really help us a lot here.
Rr
Posted by manic666 on January 17, 2010, at 4:58:54
In reply to Re: Thanks and Updates, posted by ralphrost2 on January 16, 2010, at 20:08:48
I no why he was blocked ,he stepped over the line,i got the warning for being uncivel. on his out of context scary threads,phillipa has just admitted he scare,s her to death an she is a long time babbler.yes blea you did go to court ,bobs court an was found guilty an banned its that simple.your first day back you talk the same thing,s you have lyme,s im sorry for that , but that is your problem .an you dont like the metal in your teeth thats your problem i dont hear many stories of peoples tongues turning blue with chemical poisoning, something you havent proved in yourself yet , after haveing your fillings removed, It turned out to be lymses,mabye you can do/// we all have a brain tumor from are cell phones, or the microwave , depression is what you have an always will. me to that monster is on are back for life look to meds to nuke him,I had nothing to do with your ban an you no that. I got the first warning ,but took it on the chin.i was debateing not atacking you. Your pernonal views may be alien to me i attack them not you.
Posted by Phillipa on January 17, 2010, at 19:52:03
In reply to Re: Thanks and Updates, posted by manic666 on January 17, 2010, at 4:58:54
May I have permission to speak for myself? Blue does not scare me he has led me to relook at lymes and get retested. Again positive my pdoc has the results. I will find out Wednesday if the bands are positive for active lymes or old antibodies from having had chronic lymes disease a few years ago. Hope this clears things up. I'd appreciate speaking for myself in future. Thanks Phillipa
Posted by manic666 on January 18, 2010, at 2:30:46
In reply to Re: Thanks and Updates » manic666, posted by Phillipa on January 17, 2010, at 19:52:03
of course you can speak for yourself, why not you speak obout everyone else.Hear is you post from above read it carefully you wrote it,///// Welcome back from the bottom of my heart. You're a huge asset to babble. You give me I know lots to think about.//\\\/ Sometimes it's scarey/\\\// but so easy to just file it away. I'm grateful for you although sometimes we also disagree. Not really mine is ///\\\usually out of fear for the info you posted./\\// What's important is that you are back. Love Phillipa.??????You really dont no what you write do you from one day to the next. Now go ahead an tell the babblers what you told me last night of the babblers going for lymes tests sh*tt*ng themselves after worrying after a certain post. Tell you what phillipa stick a pin in a medical book, an lets all have a test at where it lands.Wow its landed in HYPOCHONDRIA
Posted by Phillipa on January 18, 2010, at 10:45:51
In reply to Re: Thanks and Updates, posted by manic666 on January 18, 2010, at 2:30:46
Think what you like it's your're right but I do believe you misinterrpreted what I wrote. Lots of times this happens. Phillipa
Posted by Justherself54 on January 18, 2010, at 12:22:32
In reply to Re: Thanks and Updates » manic666, posted by Phillipa on January 18, 2010, at 10:45:51
I'd hate to see something like this destroy the camaraderie the two of you have. :(
Posted by floatingbridge on January 18, 2010, at 12:39:34
In reply to Re: Thanks and Updates Phillipa and Manic, posted by Justherself54 on January 18, 2010, at 12:22:32
> I'd hate to see something like this destroy the camaraderie the two of you have. :(
Yeah, ditto.
Posted by bleauberry on January 20, 2010, at 19:11:49
In reply to Re: Thanks and Updates, posted by manic666 on January 17, 2010, at 4:58:54
I find this post insulting to me as a person. I did not find it supportive or informative. The first time I read it was very hurtful, but the pain seems to be a little less now.
> I no why he was blocked ,he stepped over the line,i got the warning for being uncivel. on his out of context scary threads,phillipa has just admitted he scare,s her to death an she is a long time babbler.yes blea you did go to court ,bobs court an was found guilty an banned its that simple.your first day back you talk the same thing,s you have lyme,s im sorry for that , but that is your problem .an you dont like the metal in your teeth thats your problem i dont hear many stories of peoples tongues turning blue with chemical poisoning, something you havent proved in yourself yet , after haveing your fillings removed, It turned out to be lymses,mabye you can do/// we all have a brain tumor from are cell phones, or the microwave , depression is what you have an always will. me to that monster is on are back for life look to meds to nuke him,I had nothing to do with your ban an you no that. I got the first warning ,but took it on the chin.i was debateing not atacking you. Your pernonal views may be alien to me i attack them not you.
Posted by manic666 on January 21, 2010, at 6:47:16
In reply to Re: Thanks and Updates, posted by bleauberry on January 20, 2010, at 19:11:49
look let it rest will you. i dont post on the forum, only answer the odd question when someone needs help.i do not trigger easally but you triggered me an ruied my christmas,thats the first time i have mentioned that.as i dont go on about it,once again i dont have a problem with you, just you posts , i dont post anything you dont say , so what is the problem , is it because im the only one to stand an debate with your policies.you do trigger people they tell me in emails,so put trigger on some of your post,s an the matter is closed.
Posted by bleauberry on January 21, 2010, at 18:12:27
In reply to Re: Thanks and Updates, posted by manic666 on January 21, 2010, at 6:47:16
Hey I got a great idea. Why don't you go start a new thread on the social post and we can debate whatever you want over there? This is a medication forum, not exactly appropriate for these kinds of comments.
> look let it rest will you. i dont post on the forum, only answer the odd question when someone needs help.i do not trigger easally but you triggered me an ruied my christmas,thats the first time i have mentioned that.as i dont go on about it,once again i dont have a problem with you, just you posts , i dont post anything you dont say , so what is the problem , is it because im the only one to stand an debate with your policies.you do trigger people they tell me in emails,so put trigger on some of your post,s an the matter is closed.
Posted by manic666 on January 22, 2010, at 4:37:08
In reply to Thanks and Updates, posted by bleauberry on January 15, 2010, at 17:22:00
i no its a medical forum , you seem to forget you started the thread.you do what you like ,i have no interest in you or your threads, only to safegaurd the mentally ill patient,s from being trigered . no one has trigered my before, but you have that honour, alot of thing you say are helpful ,but some are dangerouse to the mental welfare of vunarable posters,i have said it before i dont attack you never have, just your policies, as you say its a mental forum not fantacy island. let it drop
Posted by janejane on January 22, 2010, at 8:56:33
In reply to Re: Thanks and Updates, posted by manic666 on January 22, 2010, at 4:37:08
Manic, we are all here to support one another, but obviously not everyone is going to get along and there will be differences of opinion at times. If Bleauberry's posts tend to trigger you, couldn't you just avoid reading them? That seems a lot more reasonable than asking him to censor himself, especially since other people happen to find what he says very helpful. This would make it possible for both of you to lead happy, separate lives on babble, and avoid clashing further. Remember that he has a right to participate here too, just as much as you do.
Posted by manic666 on January 22, 2010, at 12:21:41
In reply to avoiding triggers » manic666, posted by janejane on January 22, 2010, at 8:56:33
he dont trigger me all the time ,an he can write what ever he likes, i backed off from this sh*t weeks ago. he is the one ball acheing , jesus get on with your lives ,if you carnt debate tough sh*t, i have backed off so whats the problem.im not going to write all the babblers names who e.mailed me in private, i dont need back up, im not lost up my own *rs*.
Posted by Deputy Racer on January 22, 2010, at 17:50:18
In reply to Re: avoiding triggers, posted by manic666 on January 22, 2010, at 12:21:41
> he is the one ball acheing , jesus get on with your lives ,if you carnt debate tough sh*t, ... im not lost up my own *rs*.
Please don't post anything which could lead others to feel accused or put down. This is not the first warning you've had lately, and I am therefore going to block you from posting for one week.
If you have any questions regarding the posting policies on this site, please read the FAQ, located at http://www.dr-bob.org/babble/faq.html#civil Follow ups to this action should be directed to the Administration board and should themselves be civil.
Dr Bob has ultimate authority over all administrative issues on this site, and may choose at any time to revise or reverse any action taken by a deputy.
Deputy Racer
Posted by hopefullynow on January 23, 2010, at 7:12:19
In reply to Re: Thanks and Updates, posted by manic666 on January 21, 2010, at 6:47:16
Bleau,
I really dont wanna go into this, but i have something to comment;please go your way and feel free to talk about Lyme, fillings, viruses, fungs and all nasty things that could drastically change one's mental status.
There are a lot of people who discover from your advices that their problems are not strictly psychiatric, that imbalace in the brain COULD come from another place of the body.
Personally, I always find your post VERY informative and perfectly documented.Also like your approach, you analyse all the faces of the problem, from different angles, you have an excelent way to put things into light.
I'm really sorry that you have to endure that guy's moody way.Really sorry.I imagine that you have a powerfull way to influence people with your words, since you ruined man's christmas with only one post...
Regards
>i do not trigger easally but you triggered me an ruied my christmas,thats the first time i have mentioned that...
Posted by bleauberry on January 23, 2010, at 13:38:24
In reply to Re: Thanks and Updates, posted by manic666 on January 17, 2010, at 4:58:54
Well, I started this thread on a very positive note and would like to end it that way as well.
I totally understand the "trigger" thing. I don't know what it is. A chemistry thing, the way someone words something, the phrases used, views that profounding challenge closely held views, jealousy, arrogance, ignorance, all of the above? I guess it varies from relationship to relationship and I'm just real glad it doesn't happen often.
There have been two or three people in my life that I just could not stand. I don't know why. Just a vibe about them. It didn't matter what they actually said or did, though it was that I would point my finger at, it was something else I couldn't really see that just irritated me. Ya know, we can't see magnetic fields. But they are there. We can't see electricity, but it's there. We can't see oxygen or the wind, but's they are there. We can't see spirits, but they are there (this comment intended only for Bible followers, not intended as a trigger for someone who is not :-)) My point is, I sometimes wonder if there is something we can't see, something about a person, even in long distance, that sets us off. I know I have encountered it.
Once I recognize that someone rubs me the wrong way, no matter what the reason is, I instantly and purposefully avoid that person. If it's a band member, I politely bow out of being in that band. If it's a co-worker, I politely sit somewhere else during break, take a break at a different time than them, and seek areas of work at the facility that do not put me in direct contact with that person. I have high tolerance and patience, but don't want to test it.
Over the years at pbabble there have been a few people that rubbed me wrong. That one is easy. I just don't ever click on their posts. Problem solved. The world is big enough for everybody to have a piece of the pie, without getting their hands in every piece of the pie. That's how I see it anyway.
So, triggers, yes, I understand. Can't explain it really, but yes, have experienced. Best option for me is to politely avoid the situation. Here it is easy, because it's just a click of a mouse. If someone does not agree with or finds offense with anything bleauberry says, the solution is super simple. It's all in the mouse.
Thankfully 99% of the people here I find amazing, so the whole trigger thing is a non-issue for me.
Moving onto some of the possible misperceptions.
9 out of 10 people with Lyme seem to have depression and a history of psych drugs. 9 out of 10 of those people were treated for depression for a long time before it was figured out they had Lyme. They didn't have just Lyme or just depression, they had both.
Rough numbers without statistical backup, but I would estimate 7 of those 10 Lyme treated patients regain 95% of their former selves and no longer need psychiatric meds. This was accomplished after a backpack full of psych meds were inadequate, but two or three antibiotics did the job instead. It happens. People need to know. Because the pharm rep and the ads on TV are not going to tell that side of the story. The other 3 of the 10 Lyme treated patients do need to continue meds. Depression with them was either a pre-existing compounded factor or organic damage from the infection.
To put it into perspective, the CDC estimates that only 1 in 10 Lyme cases is diagnosed. That is a lot of people walking around undiagnosed. With nearly all of them having longterm depression, it is purely logical and reasonable to have suspicion in the depression population.
The same scenario as described above holds true with the amalgam illness crowd. Most of them were told they had depression. They did. They also had mercury. It wasn't one or the other. It was both. For them, psychiatric meds or supplements are crucial to regain as much function as possible while chelating metals out of the nervous system. Estimated, no statistics, 70% of them no longer need psych meds after chelation. Their depression was cured with DMSA but not a suitcase full of antidepressants and antipsychotics.
It could also be lead. How in the world did I test so high for lead when I have no known lead exposure? Where the heck is lead coming from? The air? Produce? Water supply? It's not in my house or paint, so where? I doubt there is any significant lead in any identifiable source we can think of, but there is little debate we live in a toxic world quite different than it was 100 years ago. Accumulation over time of small amounts? Genetically deficient in detox? Whatever, I guarantee I am not the only one.
People need to know this stuff. There are literally thousands of people on the worldwide web sharing their horror stories of Lyme, MS, amalgams, and candida, along with their miraculous turnaround when the proper treatments were added to their psych meds.
People need to know this stuff. I am probably the person at pbabble who is most associated with spreading this kind of awareness, but I am but one of hundreds or thousands around the country doing the same thing at other forums, clinics, newspaper articles, TV documentaries, and magazine articles.
There are three things that several groups of ill people have in common:
1. Difficult to treat depression.
2. Undiagnosed illness for many years that is not being treated but has been given the name depression. Long history of unsuccessful psychiatrists, endocrinologists, neurologists, and dermatologists.
3. Their depression lessens or goes away with the proper diagnosis and treatment.So what does all this mean? Does it mean everyone at pbabble has either an infection of some kind or heavy metal toxicity? Absolutely not. If one were to make a list of things to rule in or rule out, would these be near the top of that list? Absolutely. Why? Because of the thousands of stories just like ours.
I would probably be more skeptical, as most people probably understandably are, if I had not experienced what I have. What was that? While on rounds of DMSA chelation, I felt good. I mean, good, almost completely well. Unfortunately I never felt that on Lyme treatment, so that chapter is still open. But candida...most doctors do not even recognize it, hard to test for...why is that after 3 days on Diflucan a lot of my bizarre "Lyme" symptoms start to go away, and why is it I have a remarkably good day like no antidepressant ever did for me?
Ya know, I can't ignore those things. Those experiences are what they are. Reality is what it is. Neither DMSA or Diflucan have any use in literature whatsoever in treating depression. But they did, and do. One cannot just ignore that. One cannot just attack that because it challenges their closely held views. Those drugs are screaming for someone to hear their message.
One cannot say, "Oh, that's just bleauberrry, he is a very rare case, that doesn't happen with hardly anyone else." Wrong. One cannot say, "Oh, that only happens to other people, not me." One cannot say, "My doctor gave me a physical and says I'm fine." Wrong.
Some of us have Lyme, I have no doubt. Some of us have candida, I have no doubt. Some of us have heavy metal accumulation, no doubt. How many, I don't know, but my totally off the cuff estimate would be around 30%. That's a lot of people. They need to know more than what the pharm reps and the pdocs are telling them.
Most of us will never know from where our depression came. Most of us will find the magic combination of meds to regain our lives back. In the meantime, it is my opinion that the more we know, the sooner that time will come.
In an undiagnosable scenario...someone's depression has nothing at all to do with infection or metals...but they change their diets and lifestyles as if those things were involved...the quality of their health and livespan has been greatly improved over what it was, so absolutely nothing was lost in the process, only gained.
I am very sorry to anyone who takes offense to ideas that are outside of the psychiatrist's toolbox. I am a huge fan of the psychiatrist's toolbox, so please don't throw it out. But please, don't limit the world to just that toolbox. Things are never that simple.
Medications I highly recommend as first line:
Prozac
Zypexa
Ritalin
Modafinil
Milnacipran
Buspar
Parnate
Zoloft+NortriptylineSo please, understand, regardless of any "outside the box" approaches, I am firmly in the psych med campl.
Thank you once again for the support from all of you who spoke up. You are all amazing and awesome! There is no better team on planet earth than the team at psychobabble!
Posted by Phillipa on January 23, 2010, at 20:50:28
In reply to Re: Thanks and Updates, posted by bleauberry on January 23, 2010, at 13:38:24
BB seriously don't forget also thyroid and hormones started me. Love Phillipa
Posted by bleauberry on January 24, 2010, at 6:21:50
In reply to Re: Thanks and Updates » bleauberry, posted by Phillipa on January 23, 2010, at 20:50:28
> BB seriously don't forget also thyroid and hormones started me. Love Phillipa
Definitely. Always aware. It's just that the thyroid and hormones didn't go haywire all by themselves for no reason. Something with some power messed with them.
Posted by Phillipa on January 24, 2010, at 19:12:57
In reply to Re: Thanks and Updates » Phillipa, posted by bleauberry on January 24, 2010, at 6:21:50
BB it gets confusing as both occurred at same time as menopause which explains the hormones. They say on hey you need to check this site out National Osteoporosis Site hormones are frequently talked about. Love Phillipa
Posted by manic666 on February 2, 2010, at 3:58:07
In reply to Re: Thanks and Updates » Phillipa, posted by bleauberry on January 24, 2010, at 6:21:50
bleauberry im back, i will say this once more as you dont get it, i have no problem with you just your posts ,remember /dont buy a gun/ another one of your gems.you had a go again at me as a person soon as i was banned,the lowest form of attack , when i carnt answer back, i have debated an argued with the real boys on babble who now have left ,an finished up best of friends an still post each other,but i fear in life you are a loner. thats not a bad thing sad mabye, i am surrounded by love and i give it back.i get mad sure, im ill/ an have mood swings like 99% of posters ,but the bulk of my posts , present company excluded, are to try an cheer up ill people, an are reach out from the heart .so no more recrutment drive when im banned,lets leave it at that you have you therorise all be the same ones , an i will while in remission chill the posters,where i see a down pearson,as i say ive NOTHING agaist you . so leave it at that.
This is the end of the thread.
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