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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 12 of 12. This is the beginning of the thread.
Posted by Phillipa on March 27, 2007, at 21:41:47
So I've been starting a lot of thread lately as lately a lot of things are changing and going on and to be honest I'm very confused. Now why would a new pdoc take you off an ad even if it isn't working and then change your benzo first to long acting xanax for a week and then to Ativan 8mg which I'm only taking 6mg of as I have never been so scared in my life. The pdoc thinks it's physical and not mental the anxiety and is mad cause the endo hasn't called him back yet and he said to get a new endo. Then he is having you see an internist across the street a friend of his. Meanwhile I'm deteriorating badly. Crying I never cry and can't get about the stores even with my husband who told me I looked and acted wierd in lowe's today. What do you think this pdocs plan is? I do have hypo and hyperthyroidism. And why all the crying? Thanks for putting up with me Love Phillipa
Posted by stargazer on March 27, 2007, at 23:18:44
In reply to What Do You Think His Plan Is?, posted by Phillipa on March 27, 2007, at 21:41:47
Phillipa, I can just feel your anxiety coming through as you are starting to doubt what this doc is doing. You are asking and getting alot of feedback from others and sometimes this is not good to do with anxiety since you are getting more input, which can cause more anxiety, in someone already anxious.
You may be better off not trying to get too much information during this time of med changes and just focus on taking one baby step at a time.
First, if Luvox wasn't working, then it needed to go away, right? Perhaps a taper would have made more sense and if that is true you could always say to your doc, "can I try to cut back to 25 mg since going cold turkey is making me feel terrible". Most docs would agree to that. At this point I would let it go since you've already gone a while without any in your system.
The benzo weaning process is not my strong point but if he said take 8 of Ativan and if I was afraid and only took 6, that is a positive thing. Don't get too caught up with all the details of dosage etc. if you can adjust as you feel necessary for now you may be better off in the long run as you can find the dose that help you the best. You're a nurse and this is what nurses do best. Fine tune the treatment plan without the doc! If the plan is ALL wrong, then by all means, call him up and discuss it with him. Don't rely on others here to help you straighten out logic etc. since only you can do that, unless you don't trust him enough and that is another issue entirely.
Your situation is not a straight forward one, to say the least, and most people here, as well intentioned as we all are, will not be able to give you the best guidance on what steps to follow.
I think you have to follow the plan within your ability to do so. For example, I adjust my doses within certain parameters, as I believe I have the best ability to do this, not my pdoc. I think you have to be the one who directs your treatment but not by resisting everything he does but by challenging his decisions when you have REAL doubts about what he is doing. But not by getting everyone elses opinions and causing more uncertainty and "splitting" of your trust in his ability to help you.
Sorry for bluntness but i feel strongly about this and hope you understand what I'm saying, YOu need to keep your focus on him and not second guess his approach. If what he is doing is the issue, then you have to address your concerns with him directly and not jeopardize your chance at getting better.
Good luck in this difficult time, it will get better, just hang in there a little longer...We can support you in that way but refrain from getting too much feedback on the specifics of your treatment. Some of your confusion can come from the meds changes so don't compound it any more than that...SG
Posted by football on March 27, 2007, at 23:32:42
In reply to What Do You Think His Plan Is?, posted by Phillipa on March 27, 2007, at 21:41:47
Have you asked these questions to your doc?
Posted by KayeBaby on March 28, 2007, at 1:44:27
In reply to What Do You Think His Plan Is?, posted by Phillipa on March 27, 2007, at 21:41:47
Phillipa,
I'm mentally pinching your DH for that little comment. :)Stargazer gave excellent advice. You may be feeling desperate right now, understandable.
The Dr. sounds like he knows what is going on. I have read many stories of thyroid malfunction and what it can do-esp hashis with it's back and forth.
I also have a little bit of experience myself and the worst thing is when you have this anxiety and extreme tension with no explanation. I made myself frantic trying to find the source of it, created trouble when there was none. I felt like I was mentally chasing my tail.The best advice I ever got when in this state was from a friend who told me that "Right now. All you HAVE to do is breathe" It does not feel alright I know, but it is and it will be better.
Keep working with you Dr. and just breathe, honey.
Hang in there-we are with you.
Love back to you,
Kaye
Posted by valene on March 28, 2007, at 7:02:08
In reply to What Do You Think His Plan Is?, posted by Phillipa on March 27, 2007, at 21:41:47
Posted by madeline on March 28, 2007, at 8:08:11
In reply to What Do You Think His Plan Is?, posted by Phillipa on March 27, 2007, at 21:41:47
Stay the course and call your pdoc with your questions.
Posted by Phillipa on March 28, 2007, at 10:02:32
In reply to I'm with stargazer too. » Phillipa, posted by madeline on March 28, 2007, at 8:08:11
I did call him as I can't stop crying it comes out of nowhere and the charley horses and surreal feelings. He had the secreatary relay that he still feels its physical and two choices wait to see the internist on Friday or try a small dose of serzone. I said I'd wait. Love Phillipa ps my husband wants me to add in some of the valium for a cross taper I said no was this right?
Posted by Phillipa on March 28, 2007, at 11:03:51
In reply to Re: I'm with stargazer too., posted by Phillipa on March 28, 2007, at 10:02:32
See we're involved as called the endo to see why he hadn't called the pdoc his nurse said he tried to and couldn't get him. So another call to relay to massage to the pdoc whose secretary said not true I've answwered every call he hasn't called. So now she took the endos number and said she would call him. They have found so many physical things wrong with me in the last few years. See what happens when you get old? Love Phillipa
Posted by madeline on March 28, 2007, at 13:01:26
In reply to Re: I'm with stargazer too., posted by Phillipa on March 28, 2007, at 10:02:32
I would try to hang in there until Friday and for the time being, follow only your pdocs recommendations.
You'll get the endocrinologist thing straightened out don't worry. I mean, for heaven's sake, you can go to the endo office and get a copy of your records if it comes to that - although that could introduce a whole new level of yuck
You are on the right track to getting well I think. Just slow and steady as she goes. You'll get there.
Maddie
Posted by Phillipa on March 28, 2007, at 13:41:28
In reply to Re: I'm with stargazer too., posted by madeline on March 28, 2007, at 13:01:26
Maddie thanks and I hope you got my babblemail and the place it happened was New Bern. But I can't figure out why ativan and none of the other benzos make me feel so wierd and dizzy and crying. The serzone I need to think about with those liver issues. Love Phillipa
Posted by bulldog2 on March 29, 2007, at 7:37:04
In reply to What Do You Think His Plan Is?, posted by Phillipa on March 27, 2007, at 21:41:47
I realize he thinks everything is physical so he's giving you the ativan but it does not appear to be working well for your anxiety. I've noticed after years of klonopin it seems to fizzling out for anxiety. I had some old neurontin and took 300 milligrams. Did a good job on the anxiety and boosted my mood to. I use it now and than as neeeded. People in here seem to say that lyrica is even better than neurontin.
So maybe neurontin or lyrica may give you better results for your anxiety until they figure out your thyroid. By the way is your endo testing your adrenals? From what I've read until the adrenals are functioning properly it's hard to stabilize the thryoid.
Posted by Phillipa on March 29, 2007, at 18:04:29
In reply to Re: What Do You Think His Plan Is?, posted by bulldog2 on March 29, 2007, at 7:37:04
That's another issue as the endo was supposed to do cortisol level but when I saw the Nurse Practioner she said no results on the chart. The pdoc says no change in anxiety meds now not until three weeks from now. And I'm miserable. Love Phillipa
This is the end of the thread.
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